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by Matt Dorow (Author), Dr. Suzan Carmichael (Author), & 3 more
3) This is a brave book has been needed for a long time. I’m glad it is available at last. Mark Dorow’s writing style is the perfect voice for a loving, concerned dad. His commentary shows parents how they can be there for their sons, and how they can navigate the maze of often tricky decisions about when or if to seek surgery. Suzan Carmichael and Bill Kennedy distill their expert knowledge into text that is readable and even interesting – no small feat when dealing with a topic that is as complex as hypospadias. Genevieve Kilman provides straightforward, compassionate guidance about handling logistics of hospital treatment and the stormy emotions that often beset both boys and their parents. And finally, Ed Weaver speaks for the boys who cannot speak for themselves. His chapter is a powerful appeal to end the silence that surrounds hypospadias or any other condition that people are tempted to hide. This book is a marvelous gift that will help many people.
Hypospadias is the most common birth defect. But because it affects the penis, it is rarely discussed, and up until now there have been no published resources for parents on the subject. This book addresses that problem. Written by a man born with severe penoscrotal hypospadias, Living With Hypospadias provides a powerful, in-depth look at the emotional and physical aspects related to living with this congenital urological birth defect. It features highly personal stories from people around the globe supported by insights from medical professionals. And this is much needed. In fact, although estimates are very inaccurate, we at hypospadiasuk.co.uk believe hypospadias affects around 1 in 125 male births, making it one of the most common birth defects.
As the author states, this book will provide many people, including those born with hypospadias, those who love them, and even the professionals who treat the condition, with a deeper understanding of how hypospadias impacts men emotionally throughout their life. This book also helps parents avoid the two most common mistakes that unfortunately occur far too often: first, choosing the wrong surgeon and second, not telling their children that they were born with hypospadias, which can lead to psychological trauma when the boys discover anomalies in their penis as an adolescent.
1 Living with Hypospadias is insightful and very powerful – a wonderful resource for anyone who wants to understand better themselves or others affected by this condition. It was a pleasure to read. Highly recommended!
2 This book is very helpful for families dealing with a child born with hypospadias. It explained in full detail the different stages of hypospadias and how it affects the child both physically and emotionally throughout their lifetime. The personal stories, especially from the author himself, showed the impact it has on families dealing with hypospadias. Outstanding book!