Hypospadias Support & Education – Welcome

This site is published by the Hypospadias UK Charitable Trust, which offers support to men and boys with hypospadias, and parents of boys who are born with hypospadias.

The site is written for boys, men, and parents of boys, with the aim of providing basic information and advice for anyone who has the condition called hypospadias. This is a relatively common birth defect, but it is rarely discussed, and very little has been written about it for the lay reader.

All the men who have contributed to this website have personal experience of living with hypospadias or counselling men with the condition.

The level of discussion and presentation is intended to be suitable for people without specialised medical training. We have included commonly used terms instead of scientific names in the hope that this will make the material easier to read and understand. Where appropriate we have given the anatomical or medical term in brackets ( ).

This site is NOT meant to be a scientific review or a discussion of the relatively little scientific and medical literature that has been published to date about hypospadias. However, some of the issues discussed here are based on authoritative sources, and references can be provided if required.

None of the authors of this site is a surgeon specialising in hypospadias. It will quickly become apparent that we believe that there may be too much emphasis placed on corrective surgery at present.

While the severity of your ‘difference from the normal’ may call for surgery in many cases – and there are many examples of excellent work being done in this field – we think it is important to recognise that choosing not to have surgery is often a viable option which may deliver better long term outcomes, particularly if counselling and support are also provided as required.

For on-line sources of support, try Facebook. You will find many support groups – search on the words hypospadias, support, parents, etc and you will find many to choose from.

The Daily Mail has published some interesting articles in recent times:

https://www.dailymail.co.uk/health/

https://www.dailymail.co.uk/health/article-3349874/

https://www.dailymail.co.uk/video/health/video-1134877/

https://www.dailymail.co.uk/health/article-409521/

https://www.dailymail.co.uk/health/article-2064554/

and the Daily Telegraph

https://www.telegraph.co.uk/men/health/

And here’s a very interesting article by Professor Alice Dreger – Do You Have To Pee Standing Up To Be A Real Man?

And personal one to one counselling is available: https://www.thebalancedwhole.com/

Information about hypospadias for men, boys and parents from the UK Hypospadias Trust