Message From A UK Journalist About How YOU Can Make A Difference:
I have written several times about hypospadias and each time I have been struck by the extraordinary number of responses.
It is almost the last taboo subject we have left, and from the number of responses I have received, I believe it is a condition that may be vastly more common than is officially recognised.
What is clear is that many boys and men are continuing to suffer, from the condition itself, from the repressive reaction of families, and from well-intentioned but sometimes disastrous efforts to surgically correct abnormalities.
Many men have been left with lifelong problems which they have not even dared discuss with their parents who may have unwittingly made a bad situation worse by delivering their sons into the hands of surgeons who do not have sufficient experience of this complex area.
Specialist doctors have told me of being confronted with terrible botched repairs performed in infancy which have caused lifelong heartache.
I have also spoken to a small number of affected men and the overwhelming theme is anger over their treatment at the hands of the health service.
Despite the support offered to affected men by the arrival of the internet, many are still very isolated.
To address this isolation and ongoing problem with secrecy, shame and inappropriate treatment, I would like to talk to talk to more people about how this condition has affected their lives.
I would be grateful if anyone who feels strongly about this could contact me on either of the phone numbers below to talk to me in confidence.
Thanks very much,
+ 44 7770 350 822
+ 44 207 1019 4972
Update On The Recent Hypospadias Interview Study by Matt Jackson
I am currently completing the analysis and write-up for this research study.
I just wanted to say that I am extremely grateful for the interest everyone showed in taking part, and indebted to those men who gave up their time to talk to me about hypospadias and help me understand what it is about in a phenomenal level of detail.
I am on firstname.lastname@example.org if anyone would like a more detailed update pending a formal report and publication in a medical journal.